WorkFlow

Submit your tools and processes that facilitate the evaluation and care of persons with Chiari malformation, syringomyelia, and related disorders through the Contact page. 

 

Health Evaluation

The Chiari malformation and/or syringomyelia frequently result major disruptions in a persons life including effects on physical, cognitive, and emotional well-being. The BBHI-2 Brief Battery for Health Improvement 2 questionnaire by Pearson allows the practitioner to identify associated factors impacting a patients health in order to achieve a better outcome. The BBHI-2 is available through Pearson.

 

Taking Chiari to School

A positive parent-school relationship is critical when a child has a disability or health condition like Chiari. A collaborative approach, working with school staff to promote your child’s success, is in your child’s best interest. As a parent, your positive involvement at school and your relationship with the school affects your child’s cognitive, emotional, and behavioral performance at school. Taking Chiari to School - A Parent's Guide is intended to provide you with information to assist you as you navigate the school environment and help your child with Chiari succeed.

Prepared by Suzanne Oró, RN, MSN-ed.
This guide is not intended to provide health or legal advice.
Copyright 2012 C&S Patient Education Foundation

Taking Chiari to School - A Primer for School Nurses is for school nurses who may be responsible for the care of a child with the Chiari malformation type one (CM1). Chiari malformation type one (CM1), although not a common condition, may present challenges for the child in the school setting. Even though most children with CM1 are generally able to attend school with their peers, some require nursing care and accommodations in the school setting to promote their safety and success. Your familiarity with the CM1 diagnosis, symptoms, treatments, and available resources will reinforce parent efforts and provide continuity of care for the child with CM1 in school.

Prepared by Suzanne Oró, RN, MSN-ed.
This guide is not intended to provide health or legal advice.
Copyright 2012 C&S Patient Education Foundation

 

Suboccipital Reconstruction

Developed by the Editor in 2004, the Biomet Microfixation Chiari Plates have been used successfully in serveral hundred Chiari decompressions. Available as Specialty Plates from Biomet Microfixation, the standard plates (used in 3 cm wide suboccipital craniectomies) come in a crescent and a triangular shape. Customized large and extra-large crescent-shaped plates can be requested from Biomet Microfixation and are used when surgical revision in needed in persons referred with wider craniectomies. 

Disclosure: The Editors do not have a financial relationship with Biomet Microfixation.