CSF News - January 2016

The Chiari & Syringomyelia Foundation (CSF) is dedicated to “finding a cure for Chiari malformation (CM), Syringomyelia (SM) and related disorders.” CSF announcements for January 2016 include the expansion of the unite@night walks and the scheduling of two educational lectures.
 

unite@night walks to run from May through August

CSF’s “one-mile, casual evening walks around the country” are community activities “that bring together people who are living with the devastating effects of Chiari malformation, syringomyelia, and related disorders.” The walks help support CSF’s local chapters.

This year CSF is expanding the unite@night walk season to run from May through August. To get involved, visit unitenight@CSFinfo.org or contact Cathy Poznik at cpoznik@CSFinfo.org.
 

“Chiari and the Mind” educational lecture by Dr. Gerald Grant

Dr. Gerald Grant, an Associate Professor of Neurosurgery at Stanford University Medical Center, has special interest in the Chiari malformations, pediatric brain tumors, epilepsy, and trauma.

On Thursday, January 28, 2016 Dr. Grant will present Chiari and the Mind at Stanford University Medical Center. The event will be held in Room 1155 at Lucile Packard Children’s Hospital. A Meet & Greet will begin at 5:30 pm and the presentation starts at 6:30 pm.

Register here or contact Cathy Poznik at cpoznik@CSFinfo.org or 330-998-6195 for questions.
 

Wayne Connell to present “Invisible No More®: The Seven Realities of the Invisible becoming Visible”

Wayne Connell is founder and president of the Invisible Disabilities® Association and co-author the book, But You LOOK Good, How to Encourage and Understand People Living with Illness and Pain.

Connell will be presenting Invisible No More®: The Seven Realities of the Invisible becoming Visible at the DoubleTree by Hilton Denver Tech Center in Greenwood Village, Colorado on Wednesday, February 3. Meet & Greet begins at 5:30pm and the presentation starts at 6:30 pm.

Register here or contact Cathy Poznik at cpoznik@CSFinfo.org or 330-998-6195 for questions.

John Oró, MD
January 17, 2015